| WELCOME TO ANGELS MUSCLES Angels Muscles is dedicated to helping find a cure for Muscular Dystrophy |
Duchenne muscular dystrophy is the most common
fatal genetic disorder diagnosed in childhood,
affecting approximately 1 in every 3,500 live male
births.
Duchenne results in progressive loss of strength and
is caused by a mutation in the gene that encodes for
dystrophin. Because dystrophin is absent or incorrect,
the muscle cells are easily damaged. The progressive
muscle weakness leads to serious medical problems,
particularly issues relating to the heart and lungs.
Young men with Duchenne typically live into their late
twenties.
Duchenne can be passed from parent to child, but
approximately 35% of cases occur because of a
random spontaneous mutation. This is our case.
Gabe has a duplication that is so rare, the doctors
cannot find another boy with the exact dystrophin
error.
Typically, boys with Duchenne lose their ability to walk
between the ages of ten and fourteen. However there
are boys even younger that lose their ability to walk.
By their late teens, young men lose the strength in
their upper bodies, including the ability to move their
arms. Also during their teenage years, young men
with Duchenne usually need help with breathing at
night. Over time, their breathing or respiratory
systems weaken, and they require constant support.
Young men with Duchenne typically survive into their
twenties or early thirties.
While there’s currently no cure, with informed and
timely treatment, boys with Duchenne can maintain
their independence, walk, and live longer than ever
before.
WE HAVE HOPE!
stay tuned for details on our
upcoming fund raiser because
together - we can END DUCHENNE!
There are many organizations searching for a cure for
Duchenne Muscular Dystrophy and researchers are
so very close!
Please stay tuned for a complied complete list of
organizations!
Cure Duchenne
Parent Project Muscular Dystrophy
fatal genetic disorder diagnosed in childhood,
affecting approximately 1 in every 3,500 live male
births.
Duchenne results in progressive loss of strength and
is caused by a mutation in the gene that encodes for
dystrophin. Because dystrophin is absent or incorrect,
the muscle cells are easily damaged. The progressive
muscle weakness leads to serious medical problems,
particularly issues relating to the heart and lungs.
Young men with Duchenne typically live into their late
twenties.
Duchenne can be passed from parent to child, but
approximately 35% of cases occur because of a
random spontaneous mutation. This is our case.
Gabe has a duplication that is so rare, the doctors
cannot find another boy with the exact dystrophin
error.
Typically, boys with Duchenne lose their ability to walk
between the ages of ten and fourteen. However there
are boys even younger that lose their ability to walk.
By their late teens, young men lose the strength in
their upper bodies, including the ability to move their
arms. Also during their teenage years, young men
with Duchenne usually need help with breathing at
night. Over time, their breathing or respiratory
systems weaken, and they require constant support.
Young men with Duchenne typically survive into their
twenties or early thirties.
While there’s currently no cure, with informed and
timely treatment, boys with Duchenne can maintain
their independence, walk, and live longer than ever
before.
WE HAVE HOPE!
stay tuned for details on our
upcoming fund raiser because
together - we can END DUCHENNE!
There are many organizations searching for a cure for
Duchenne Muscular Dystrophy and researchers are
so very close!
Please stay tuned for a complied complete list of
organizations!
Cure Duchenne
Parent Project Muscular Dystrophy
| This is Gabe, he was diagnosed with muscular dystrophy almost 2 years ago. We are on a mission to save his life. |
Wish Lantern pictures from December
